ARIZONA CHAPTER OF THE
NATIONAL PARKINSON FOUNDATION

Reference Material

The following series booklets are made available by the National Parkinson Foundation at no cost. If you'd like to place an order, please visit the NPF's Order Publications page within the Publications section of their website.

What You and Your Family Should Know Edited by Gale Kittle, RN, MPH
Basic overview of Parkinson symptoms, related conditions, and medications. Tips for maintaining best health with exercise, nutrition, sleep, mental wellness, and adaptation. Suggestions for finding good health care. 45 pages.

Medications by Jean Pintar Hubble, M.D. and Richard C. Berchou, Pharm. D. Discussion of medications used to treat Parkinson disease, including non-motor symptoms, mood, and sleep disorders. Clinical trials research and complementary medicine are also addressed. 80 pages.

Caring and Coping by Susan Imke, RN, MS, Trudy Hutton, JD, and Sheree Loftus, RN, MSN
Written especially for family caregivers. Assessment of feasibility of home care, how to organize financial and legal matters, and how to create support networks. 72 pages.

Nutrition Matters by Kathrynne Holden, M.S., R.D. Importance of good nutrition in Parkinson care. Bone health, constipation, adequate hydration, and unintended weight loss are addressed, along with suggested recipes and menus. 59 pages.

Fitness Counts by Heather Cianci, PT, MS, GCS Descriptions and benefits of specific exercises to maintain flexibility, strength, and aerobic conditioning. Photographs and drawings of exercises throughout. Tips for posture and balance. 35 pages.

Speech and Swallowing by Marjorie L. Johnson, MA/CCC-SLP Self-assessment tools for speech and swallowing, as well as tips for addressing problem areas. Describes role of a Speech-Language Pathologist in Parkinson care. Chapter on memory changes. 32 pages.

Activities of Daily Life: Pratical Pointers by Heather Cianci, PT, MS, GSC, Lizette Cloete, OTR/L, Joan Gardner, RN, BSN, Marilyn Trail, MDT, OTR, BCN, and Rose Wichman, PT Suggestions for maintaining independence in, and use of adaptive aides for, bathing, dressing, sleeping, eating, toileting, and mobility. Includes helpful tips for caregivers. 40 pages.

Mind, Mood & Memory Editors: Rebecca Martine, APRN, CS, BC and John Duda, MD
Mental and emotional health issues, cognitive changes, sleep disturbances, dementia, and psychosis are discussed. Includes chapter on mental health issues for caregivers. 96 pages.

A Guide to Deep Brain Stimulation Therapy by Jill Marjama-Lyons, MD, Michael S. Okun, MD
Detailed description of DBS surgical procedure, including pre- and post- surgical care. Discussion of pros and cons, including which persons with Parkinson disease might have optimal response to DBS. 56 pages.

AZNPF PRESS

• Fall 2007
  Book review "Shaker Guy," What's on the Web? PAN, First Ever Blood Test to Detect PD, Gene Therapy for PD
• Summer 2007
  Book review "Right to Recover," Annual Meeting & Symposium, Blood Pressure Drug May Halt PD
• Spring 2007
  New!! AZNPF Book Club, Support Group highlighted - Tremble Clefs, Educational Series for Support Groups, Teva's Azilect New PD Drug, Gene Therapy for PD Promising New Research
  
• Winter 2006
  Gracie vs. PD Fundraiser, Power Over Parkinsons Conference: Review, Welcom Rhaye Mosley! AZNPF Fundraising Manager, David Ammons: Run for Shelley's Shakes
  

DVDs - AZNPF Lending Library

• Balance & Fall Prevention Workout, Beginning Level - Physical activity is an important component in helping to prevent falls.  SIT AND BE FIT teams up with Stanford University Medical Center’s Trauma Services, Sequoia Hospital, and the San Mateo County Fall Prevention Task Force to present a variety of exercises designed to reduce the risk of falling.  This workout is intended for those who are most comfortable exercising in a seated position progressing to standing exercises using the chair for balance.  Join Mary Ann Wilson, RN in this beginning level workout specifically designed to improve leg strength, flexibility, eye tracking, balance, posture, and breathing.  
• Balance Fall Prevention Workout - Improve your balance and reduce your risk of falling by practicing specific exercise skills with the Balance & Fall Prevention Workout video or DVD.  SIT AND BE FIT's Mary Ann Wilson, RN and Lori McCormick, PT team up with Sequoia Hospital, Sequoia Hospital Foundation, Trauma Center at Stanford University Medical Center, and the San Mateo County Fall Prevention Task Force to present a variety of effective exercises to help prevent falls.
• Parkinson's Work Out II - Parkinson’s specialist, David Greeley, MD, discusses what is currently known about this chronic disorder of the central nervous system.  While Parkinson’s affects each person differently, Dr. Greeley emphasizes the need to exercise every day and offers exercise guidelines.  Mary Ann Wilson, RN and Lori McCormick, PT present a cheerful and upbeat workout focusing on posture, breathing, balance, trunk mobility, ankle flexibility and rhythmic stepping.  Also included are simple but functional movements such as moving from a sitting to standing position and facial exercises.  Parkinson’s Workout II is the second in a series of workouts designed to meet the needs of those with Parkinson’s.     

To check out any of the above DVDs for a 2 week period, please complete an on-line request form.

Additional Reference Material

The Alliance for Medical Research invites you to learn more about one of the most misunderstood issues of our day. "Regenerative Medicine: Pathways to Cures" (run time 14:44 minutess) gives a basic understanding of stem cell research. Visit their website at www.tamr-ed.org to watch or download the video.